New Tube for Superbean
So, Nolan got a new ET tube put in today, apparently the old tube was blocked by a pretty big goober (NP’s words) which was causing little bean to desat on his oxygen which caused pretty big drops in his heart rate. Before the new tube an x-ray was done, which showed that Nolan’s right lung has pretty much fully collapsed so he’s back on high pressure to try and reinflate his lung and on high added oxygen to keep his o2 saturation up. The np thinks it will take some hours to get the lung reinflated which is more reassuring than some days. one added concern is that Nolan’s body seems to be eating up platelets at a high rate. He’s received quite a few platelet transfusions over the past 24 hours which could mean a few different things: persistent infection somewhere or a continuing necrotizing of his intestines. at this point its a wait and see strategy from the docs, surgeons, and nps. some positive info, his blood pressure has remained good, he has opened his eyes wide and long to look into karas waiting gaze and he seems to respond to a singsong from his parents that goes a little something like this:
“No-lan La-Rue,
Heal-thy cells through-out your body,
No-lan La-Rue,
Healing lungs for you,
and Good Growth too.
(alternate with)
and a healthy gut too.
or
We love you.”
Feel free to hum it all day long. Kara and I wake up singing it. Peace and light.
Sunday, October 15, 2006 at 8:35 pm
We will sing with you as long as it takes.
Love from Fairhope
Sunday, October 15, 2006 at 9:27 pm
We love singing! We will create a west coast version of Nolan’s song. Growth, healing, and blessings to Nolan.
amy
Monday, October 16, 2006 at 1:44 am
What a lovely song! Thank you for sharing it, Ronan. I’m already thinking about the happy dance we’ll all do when Nolan is completely out of the woods. Until then, I’ll continue with prayers, blessings, and wishes for all good things for Nolan, Kara, and you –and for all of yours.
Thank you for sending peace and light. Right back at you.
Pat Branch
Monday, October 16, 2006 at 10:29 am
I only learned of Nolan on Friday when Lynn dropped by to see me. Please know that Wayne and I are thinking of you.
We are thinking about the miracle of our age, Nolan’s will and determination, the love your family is reflecting, and the dedication we witnessed between you, Kara, and Ronan. Peace.
Shirley
Monday, October 16, 2006 at 2:42 pm
Could you post a video of y’all singing or at least an audiotrack so we have some idea of the tune? Otherwise some of us will be singing to the tune of kumbayah while we’re over here pretending to be the Pet Shop Boys or Aretha Franklin. Just kidding, I’m sure it doesn’t matter as long as it is a happy tune. We’ll stay away from Paco’s version of kumbayah, however…
Peter y Paco
Monday, October 16, 2006 at 7:26 pm
Sweet ones - I was at Penland this weekend where I said a Nolan prayer looking over the knoll where his parents were married. His spirit surrounds the place, and I thought of all of you all the time. Mountain strength, sweet boy. we love you. xxx
Monday, October 30, 2006 at 12:40 pm
JUST WANTED THE WHOLE FAMILY TO KNOW THEY ARE IN MY THOUGHTS & PRAYERS. I’VE PUT THEM ON SEVERAL PRAYER LIST IN EASTERN N.C.,SO THEY’RE ARE PROBABLY 1000 PEOPLE HOLDING THEM IN A CIRCLE OF LIGHT. LOVE YOU GUYS. TAKE CARE &GIVE NOLAN MY LOVE. FLEMING