a bean odyssey
duuuh-duuuh-duuuh
da-duuuh
bom-bom-bom-bom
…and so on Nolan’s 2 month birthday he weighs in at 1001 grams, thats 2# 3 oz!, almost double his birth weight and hopefully well on his way to pounds and wonderful pounds of fat and muscle. he has a new friend, his zakee, a big microfill fleece hand that snuggles around him (pix on the way) and he, nolan, is almost a clean straight bean with only 1 mic/kilo/hour of fetenyl (sedative) on his drip as opposed to the 7 mic/kilo/hour after his pda surgery. he is back on full fortified feeds of karas mothers milk and is on low oxygen requirements from the drager ventilator. kara and i are feeling good and nolan seems to be feeling the same because he smiles alot, or it just could be gas.
he still has a million miles of hurdles: the docs have tried ventilator changes in attempts to ween him, but basically he’s back to the same settings he’s been on for a while; he is on continuous feeds to help nutrient absorption because his ostomy output (#2, poopy) increased slightly which could result from the increased calorie fortification of kara’s milk or poor absorption from his healing bowels; he is receiving sodium and potassium supplements because his electrolytes have been lower possibly because of the increased ostomy output and lasics (diaretics).
all in all, nolan continues to slowly gain ground in this world, and we will take and cherish every inch he procures for himself and his tiny fist shaking in the air. thanks to everyone for keeping up and keep sending growing thoughts nolan’s way. pray that he grows like a little butterbean stalk which seems to be the path to Nolan’s joining his family at home on windsor circle.
Thursday, November 9, 2006 at 2:54 pm
YAHOOOOOOO!!! Way to grow Nolan!!! Kudos to you Ronan and Kara for holding space for such BIG LOVE to support this little guy. More stability and smiles your way. Love you much. amy and shannon
Thursday, November 9, 2006 at 4:25 pm
Wow! So much good news all at once! Between Nolan kickin’ butt and the election results, we’re just beside ourselves. He’s getting the poop out just like they are in Washington! And even if he is a bean, I’m sure it’s not just gas. Looking up at the two of you? What’s not to smile about?
peter y paco
Thursday, November 9, 2006 at 4:47 pm
What a wonderful report on sweet Nolan -that’s a baby who knows how much he is loved - he is a total inspiration as are you guys - we’ll keep holding all of you in the light - and what a lovely light shines on us just being around your amazing family -
you are each so dear - H
Thursday, November 9, 2006 at 4:51 pm
Yay! Great progress, fella! Can we interpret the beginning of this post as encouragement to go for 2001 grams?
Thursday, November 9, 2006 at 9:39 pm
I am so happy with the good news coming from the butterbean and mom and dad.
I can’t wait to see him again. Gotta love that smile!
Friday, November 10, 2006 at 9:19 am
hey well im in english again, just thought i would check in on nolan and you guys. im glad to see that he has gained some weight. he looks good to me. i cant wait until i can see him. whenever that is. well i gotta go but like i said i check the web cite when and wherever i can. love you guys
Caroline xoxoxoxoxo
Friday, November 10, 2006 at 11:22 am
What fantastic news! It’s incredible to look at the journey to-date. He’s come through so much dangerous barriers and I know he’s got more to go. BUT, to know that he’s growing and kicking sedatives and taking milk and making fleece friends, smiling, pooping — the whole thing. It gives me joy-tears…
Ronan + Kara = Amazing.
Go, Nolan. Go.
Thursday, November 23, 2006 at 10:45 pm
I was just checking
in to see some news
and I am so exited that it was nolans
first thanks giving