sat update
Nolan is approaching three times his birth weight of 515 grams, as of last night he weighed in at 1514 grams, he had a week of slow but steady weight gain. The docs have decided to increase his calorie fortification to 27 cal to see if it will increase his weight gain. He is up and down on his ventilator settings, but thankfully his o2 requirements remain lower and the pressures to keep his lungs inflated seem to be the main points of concern and fluctuation. This weeks eye exam caused some concern, and nolan is due for a follow up on tuesday which could determine whether or not he will need laser surgery. The attending optometrist said there were markers in place and given his age that his eye problems may resolve on their own without the need for the surgery. Also on the menu for the coming week is another attempt at extubation and getting Nolan on the cpap to give his lungs a little rest and see if he has made any more progress in moving away from the chronic lung disease days. And finally, straight from slc, utah, Nolan’s auntie amy is coming in late monday night for her first visit with the butterbean. he, kara, and i (as well as her puppy and kitty niece and nephews) are really excited and looking forward to her visit. thanks to everyone and keep the growth mantra going.
Saturday, December 9, 2006 at 9:02 pm
And Auntie Amy CAN’T WAIT….It is not uncommon for those who know me to expect high levels of enthusiasm for certain things. I have been waking up so early (4am) in anticipation. Our circle of prayer is expanding as I am connecting with many people who have been through life journey’s similar to Nolan’s. Nolan’s name is on the lips of many in the SLC Valley and know that each of those lips are whispering prayers of growth and sustainability. Blessings, a&s
Sunday, December 10, 2006 at 8:36 am
Maybe it is because I’m a teacher, maybe it’s because we were out of the loop for two and a half weeks, maybe it’s just the way I am, but I’m confused. (Ronan nods knowingly…) I’d really appreciate a summary. I’ve tried reading all the comments in order again and again and can’t figure out what hurdles he’s through for good, what is still a lingering concern, and what are the areas we really need to be channeling energy towards. I don’t know what a cpap is, but most of the jargon you’ve explained clearly (thank you, thank you, thank you). And I’ve got questions like “If our diet is 2000 calories per day, can his really be only 27? or is that 27 per hour or per feeding or …” I know, I know, you’re thinking, who is he to be so demanding? Don’t these guys have enough on their plates without catering to his whining? I agree. I guess I’m a Nolan addict, because I certainly went into withdrawal while we were disconnected from the web and now I’m just trying to get my bearings again. Do y’all have a link to a Nolan 12 step program for those of us who can’t seem to get enough?
Monday, December 11, 2006 at 10:24 am
Ronan-
Cameron told me about the site and I have been checking in on any new developments..I am a medical social worker and am familiar with all the events Nolan has had and I feel the medical staff is doing great with keeping you and your wife informed and educated. (a lot of times this is not the case) Am thinking and praying for you both as well as grandparent Petersons. Lisa