(good) four letter words
The H word has not only been uttered, but they’re actually getting specific about it. On Monday, Kara & Ronan got the word that Nolan would be (expected to be) ready to go home in TWO WEEKS!! This is exciting but has many other associated emotions as well. Stress would be one of those emotions, since there is much preparation to be done. Nolan came so early that the nursery had not been set up for him, and since then, all energy has been focused on the hospital and, at home, on keeping up with the basics of life (food, income, dog love…), so now there’s a bit of home prep to do.
Home still remains in the realm of the future, and predictions. We do have a bit of very exciting news about an actual event: a couple of days ago, the nurse took Nolan off the nasal cannula! He was doing really well on almost no assist from the cannula, so she thought she’d just give him a try off it, and he did fine!!! As far as I know, he has stayed off the cannula since them, even through a very unhappy and agitated afternoon yesterday (experiencing a bit of a withdrawal from the pain meds).
As a result, when Kara gave him a bath the other night, she got to see him completely naked and unattached to machines for the first time! His little face is free and clear and can be viewed in all its cuteness without obstruction…
This also means he may be able to go home without oxygen, which makes things a bit easier — less to haul around and maintain and have in the way.
Nolan has his g-tube for feeding, but it has a little “button” cap so he does not have a tube hanging out all the time. He can be burped through the g-tube, which works very well. He’s back to regular breastfeedings.
Oh, and how ’bout dem Heels? I think Nolan lent them a bit of his super-comeback, never-give-up-the-fight spirit last night…
All in all, lots of good news coming our way this week. Stay focused on growth and steady progress!
-Maria
Thursday, February 8, 2007 at 10:31 am
Home! I’m all teared up now.
Thursday, February 8, 2007 at 1:25 pm
Wow! Wow! WOW!
That is just such good news I can’t stop smiling!
Sending you all lots of love and continued good days,
Kelly and Matthew
Thursday, February 8, 2007 at 1:37 pm
How absolutely fabulous to have an estimated time of departure for “HOME”. The time has flown the way he’s grown and now on to the next adventure.
Deb and Devon
Thursday, February 8, 2007 at 6:28 pm
Wow, wow, and wow!!! What wonderful days to look forward to. Lots of love to you all,
renee
Thursday, February 8, 2007 at 7:26 pm
Wow that is so exciting!!! Nolan you are a Miracle, You have been sooo strong and fought back each time you had a bump in the road you overcame it like a champ. I know that for you kara and ronan it was quit a sight to see your baby without any tubes or machines. Im very happy for all of you. Hope to see you guys soon and i cant wait to hold you nolan. Hugs and Kisses to you all.
Love caroline xoxoxoxoxox
Thursday, February 8, 2007 at 11:44 pm
what a beautiful word - what a beautiful world - we are so thrilled!!!!! I’ve got about 20,000 baby toys to bring over whenever you are ready! Wow - what an amazing feeling that will be - stepping over the threshold into your home all together. I’m with Kirsten - all choked up -
LOVE YOU!! - Heather