One Year Home
On Feb 11th Nolan has been home with us for one year! He continues to blow off all statistics by not returning to the hospital, not going back on oxygen, eating well and acting like he never had a massive brain bleed. We tell him how amazing he is many times a day.
He is completely off the g-tube now. His liquid intake has greatly increased, especially just in the last week, he drinks almost too fast sometimes. There was a month where he lost weight and we started hearing rumors of returning to the g-tube for calories. I was determined not to go back to that and started bringing Ben & Jerry’s vanilla ice cream home to make shakes. The only ice cream I could find with more calories is Hagen Das but it wasn’t significant enough to override my loyalty to B&J. Almost needless to say, the shakes are working and he is up to 18 Lbs 4.5oz as of the 12th. He is drinking the shakes from this cool cup his pt brought him, it has a straw that keeps the liquid up near the tip so he doesn’t have to work so hard for a drink. The only bad thing about all this is the temptation a pint of Ben & Jerry’s is for me; I am doing better about it now but the first week I have to admit to helping finish one off. Mmmm.
We don’t know when the g-tube will get removed. We have certainly passed the “time test” that is required but they won’t take it out during cold season. They may want to leave it in until his (final?!) surgery is over, not sure. We will know more about when that will be after his urology appointment on Feb 25th.
I finally got a few new photos up for you. Now that I know how I will be able to update more often. The video isn’t up yet, Maria will have to do that simply because of the size of the file. Enjoy the new photos. He is changing so much everyday that most of these new photos look old to me now…
Take care everyone.
Thursday, February 14, 2008 at 5:47 pm
Happy Valentine’s Day, Nolan! You are a Super Sweetheart! Happy one year home, what a great event!
Lots of love !!
Friday, February 15, 2008 at 10:31 am
Yeah Nolan! You are an amazing little boy.
Wednesday, February 20, 2008 at 10:06 pm
Nolan continues to amaze me..When I am down, for whatever trivial reason…I check in on you guys to see how it is going. Parenting is a full time job now matter what…and you all are the best…Peace,Linda Bowman
Monday, March 3, 2008 at 6:00 pm
Super Nolan!! Yay!! So happy for all of you!! My sister met Ben and Jerry when they were just starting out in Burlington, Vt., churning and turning an old gas station into a homemade ice cream making oasis. She said ‘I met these guys who are so nice and they make really good ice cream…’ I am sure that Ben and Jerry could not be more proud of a use for their delicious wholesome ice cream than helping Nolan!! Good thinking momma Kara! *Much, Much Love to All!*
Wednesday, March 19, 2008 at 5:18 am
mmmmmmmMilkshakesmmmmmmmmmmmMilkshakesmmmmmm definitely the way to go. Every time we had teeth pulled or even just our braces tightened, we’d always live on milkshakes for days and days–much longer than was ever needed. Supposedly we were to put raw eggs in them, but we never did. When does he get to “graduate” to other flavors like chocolate or coffee?